Welcome to the Ellenor Wiseman Trust fund raising page.

These webpages are dedicated to a trust fund we set up for our daughter Ellenor (or Belle as we so affectionately call
her). Belle needed to raise £5,000 for investigation and subsequent treatment out in Nevada, USA. As their healthcare
systems differ from the UK, we raised the money in order that we could settle relevant bills and make donations to all
the organisations involved. We previoulsy recorded a message from our Belle HERE.

We have since been and gone to Nevada with the £17,000 raised by many wonderful people all over the world. The
trip was successful in that one Doctor diagnosed one problem that UK doctors failed to even acknowledge. We are
still waiting for blood results via the genetics team to come through. We will keep you posted.

Its with thanks to Ruth and Scott of Nevada, USA plus his associates that we were able to set up this trust to fund the
most exciting opportunity that have bestowed upon Belle. Kindness and thoughtfulness doesnt get any better than
this. We are grateful to them beyond any measure and hope they could ever understand our grattitude. This is a
statement from Ruth and how the offer of help came about:

"When I read about Ellie’s plight on her mother’s blog, I knew I had to do something to help. With the aid of my
husband, Dr. Scott Denton, who is a professor of pediatrics at the University of Nevada School of Medicine, we
have arranged with various physicians and clinics in the Las Vegas area for Ellie to seek further medical care. I
too work with within the medical school and am hopeful that with our vast number of contacts, we will be able to
help Ellie and her family.

Thank you so very much
Many of you may have heard of Ellenor's struggle to be diagnosed and how hard it is for us, as parents, to accept that
nothing can be done where Ellenor is concerned. It struck home recently when one professional described Ellenors
condition as "what you see is what you get". To us, this was highly unacceptable.

For those who are not familiar with Ellie's story, allow us to recap. Since Belle was 3 months old there has been many
studies to try and understand why, at first, she was failing to thrive. All the time new problems presented themselves -
mainly her gait and low muscle tone. Ellie also has poor vision with photophobia, poor fine motor skills, lower limb
muscle wastage and currently nestles on the 0.02 centile. She is 120cm high and weigh around 2 stones 8 lbs (36lbs).
And whilst she is a happy little soul she does require the use of a stroller and electric wheelchair to assist her on
getting out and about. She is not yet independant - she still requires adult guidancein her life.

In 12 years, according to the NHS, we have "exhausted all avenues". But we will not give up, no matter what the
professionals advise. Our dream is for Belle to walk independently without strollers or chairs, without excruciatingly
painful shoes, understand her underlying problems and have confidence that she can manage on her own should she
wish to leave home. At this stage in her life - none of things are solvable because she has no diagnosis or any form of
support. We hope me might have yours :)
More information
Ellenor is unable to walk great distances without the aid of her buggy. At 12 years old it is not the most dignified mode
of transportation but we all cope well with it - especially the stares. Belle insisted on walking one mile to form a basis
for the sponsored walk. This she managed quite bravely on the 22nd March 2008 and it took her 1 hour and 45 minutes.
At the best of times, Ellie can manage 100 metres without wanting a rest. A mile is roughly 16 times this distance!

So far we have raised in excess of £17,000 and we are striving to raise more money becuase it has since come to light
that she requires hormone injections. The NHS will refuse to give her them for free so we have to pay for them. At
roughly £15,000 a year, its is not something most of us can afford. Raising money by holding competitions, raffles and
more sponsored events will be key to the continuous fund raising - we firmly believe that you have to work to earn
money. So work we will do.

A raffle was held throughout March and April to help raise money and prizes were donated by scores of UK
scrapshops, US scrap kits and members of the scrapping community who gave thier hard earned stock for the prize.
The prize winner was picked on the 1st May - Karen Garlick of Cornwall. Congratulations Karen!

It is with deep thanks that we also show our love and thanks to those who helped raise every single penny of the fund
from kids donating 80p pocket money to a private donation of £5,000. People organised sales, swaps, auctions and
wacky events - all for the sake of Ellie. We think you are all wonderful, truly - we do!


Thank you.
Raising the money
At the moment we are unable to register this trust as a charity as the Charities Commission will not issue
registration numbers to single cause charities.
This is not something we can do anything about so we remain governed by ourselves.
In light of this, we are prepared to give summaries and breakdowns of expenditure to all interested parties at the
above email address.
We are following guidelines as set out by the Institute of Fundraising.
To contact us:

email: kirstywiseman@hotmail.com

Tel: 07788 994046